Boosting EU Competitiveness through Public-Private Partnerships in Rare Disease Research: the Role of European Reference Networks
Van derden24/09/25
Together For Rare Diseases is delighted to welcome you to a high-level discussion on enabling and advancing public-private partnerships (PPPs) in rare disease research.
Public-private partnerships (PPPs) involving European Reference Networks (ERNs) and the pharmaceutical industry have emerged as powerful tools to accelerate rare disease research and innovation. By leveraging the expertise of ERNs, the capabilities of industry stakeholders, and the input of patient communities, these collaborations contribute not only to improved health outcomes but also to the European Union’s competitiveness in the global life sciences arena.
The event will explore how such partnerships address research gaps, enhance innovation capacity and support the EU’s strategic objectives, including fostering economic growth, scientific leadership, and patient-centric care.
- Hosts: MEP Stine Bosse (Renew, Denmark) and András Kulja (EPP, Hungary)
- When: Wednesday, 24 September, 12:00-15:00
- Where: European Parliament, SPINELLI 5G1
- Meeting point: Station Europe, Espace Léopold, Place du Luxembourg, 1050 Brussels
For more information on the event, please contact secretariat@together4rd.eu